Fabioso

I know its been said a few times that Scoobynet isn't the best place to discuss medical info but I have had a problem for a few months now and none of the consultants/doctors I have seen have been able to help me find out what's causing it. So I thought I'd post link to a video of what happens in the hope someone might know of someone who has had something similar and what they did to sort it out.

I know how this might look a bit but as per the title of the post.

http://s215.photobucket.com/albums/c...=HeartRate.mp4

My blood sugar goes up very high post 1 hour but apparently not high enough for long enough to be classed as diabetes and apparently (according to the 4 specialists I have seen) that wouldn't cause fast heart rates......

urban

iTrader: (1)

**** knows

I went through something similar to that several years ago, but it passed in minutes - not like yours!
And its been a long long time since it last happened - touch wood.

Randomly the heart would beat faster and faster, I remember beginning to sweat a bit through what I classed as fear, as I though - ****, this is it.

Went to docs - said all ok, nothing obviously up - took blood and sent it away for a shed load of tests.

Sent to a specialist - he couldn't find anything wrong either

Midlife......

iTrader: (2)

Can't see the video (at work) but have you been told you have paroxysmal tachycardia ?

http://en.wikipedia.org/wiki/Paroxysmal_tachycardia

Shaun

Jamie

If the doctors do not know what the problem is you have no chance on a car forum

Fabioso

The Endo today mentioned that as a possiblilty but it only seems to happen after eating foods where there seems to be a direct correlation to them being high in sugar, trouble is my blood sugar readings don't show a huge dip supporting a hypoglycaemic crash and then an easily explained adrenaline response.

The ecg's always show Sinus Tachycardia and I believe its fast due to adrenaline being released because of the way I feel but what I'm trying to find out is why the adrenaline is being released in response to the meal.

Sometimes these episodes last more than 8 hours which totally disables me from doing any kind of activiy but lying down.

Fabioso

[quote=Jamie;10091426]If the doctors do not know what the problem is you have no chance on a car forum[/quote

I was just hoping may be someone might know of someone who has had something similar rather than expecting people here to be able to directly know what the medical problem was.

Sometimes looking in the most unobvious place can come up trumps, I know its a long shot as the title of my post said.

I gotta keep trying to find the answer or some kind of way to manage this

Jamo

iTrader: (23)

have you been checked for hyperglycemia?

ALi-B

iTrader: (1)

Petrolhead's diagnosis:

Your pancreas and/or adrenal gland is suffering from overboost/compressor surge; possibly due to a sensor fault in thats confusing the ECU (endocrine control unit )

In response to eating it spins up and produces insulin to reduce blood sugar, but somewhere a sensor is saying there isn't enough blood sugar (when there probably isn't) so ramps up the adrenalin, which creates surges, the boost control system eventually realises this and cuts the power.

IMO if its not hypoglycemia, its an allergy to something in what you eat. At worst maybe a tumour on a gland somwhere.

GP won't help; he's like a Kwik-fit fitter. Jack of all trades, master of none. What specialist you need to go to though is anyone's guess.

bigsinky

you have tried cutting out sugar in your diet to rule out the diabetes thing yes?

Midlife......

iTrader: (2)

pheochromocytoma...... very rare and a textbook thing but I guess they have ruled it out.

http://www.medicinenet.com/pheochromocytoma/article.htm

Just a wild stab in the dark LOL

Shaun

Fabioso

Hi Shaun,

Yeah Pheo has been scanned for via MRI and MIBG both negative.

I also travelled to Newcastle RVI to have a plasma metanephrines test which was also negative and that is apparently very accurate.

Out of all the conditions they had tested for, this seemed a good match as I had something like 8 out of 10 of the main symptoms although not the profuse sweating which was one of the main 3 and my 24 hour urine tests showed abnormally high levels of adrenaline in 2 out of 3 tests but not high enough to confirm a Pheo.

At the moment I'm looking at something called "Adrenergic Postprandial Syndrome"

I know the cardiologist is going to want to put me on a beta blocker but I'd rather get to the source of the issue than just mask it.

Fabioso

There is no doubt my blood sugar response to carbs is abnormally high after 1 hour however it comes back down within 2 hours and so they say its isn't diabetes and also my fasting blood sugar level is very normal.

To me though if Pheo is totally ruled out then blood sugars are a def possibility unfortunately though the level doesn't dip into hypoglycaemia which would bring about an adrenaline response.

I am though going to look at going on a diet for hypos and see if it helps!

Fabioso

Hahaha GP = Kwik Fit

Midlife......

iTrader: (2)

Just as an aside are you on any other meds at the moment......Salbutamol ?

Shaun

SwissTony

iTrader: (19)

Did your heart rate increase when you saw this was released ?

john banks

You have something rare I think. Best go to a franchised dealer, they have all the computers and things, cars are full of computers these days innit.

Kwik Fit fitter.

Seriously, you have a meticulously demonstrated history and from the sounds of it a predictable and repeatable trigger of hyperglycaemia. I think the endocrinologist needs to look at the cause-effect data you have again and look for rare causes/write a case report for a journal/refer to a tertiary care specialist.

With a sinus tachycardia I also don't think it is your heart, but an endocrine cause.

JTaylor

Scoobytrader to room 3 to see Dr. Banks, please. That's Scoobytrader to room 3. Thank you.

Fabioso

No meds at all, I avoid caffeine like the plague as well

Only thing that did happen last April was that I was injected with an epipen which yes you've guessed if contained epinephrine.........my bodies response to that puzzled the doctors weirdly as my heart raced for 10 hours following that injection.

Fabioso

Thanks for your reply John, I totally agree with that!

How would I get the Endo's to do that? I've now seen 2 seperate ones and both say they don't know and tell me to go back to the cardiologist. What's a tertiary care specialist?

I would love to go to a large hospital, eat this meal and get some tests done on this because I am able to repeat this time and time again with this food, trouble is it also happens when I don't want it to ......like at work who are starting to get concerned about "the whole situation".

I was just amused by the Kwik Fit remark, meant no disrespect to GP's at all!

Midlife......

iTrader: (2)

Just curious as to which hospital you are under as you had to go to Newcastle , the Question about meds was related to any drugs which might affect COMT breakdown of adrenalin.

Shaun

ALi-B

iTrader: (1)

No disrespect from me either; Its just not feasbile for one human no matter how talented to be able to know diagnose and treat every ailment (unless they suffer from some sort of ASD), within a given 'appointment' slot. I just hate the way the whole non-emergency health care system heavily relies on them to refer you to whoever, but at the same time they are expected by powers that be to treat that person first for what they think is wrong and get that patient out the door so they can treat the next one, and the next and the next. etc.

fast bloke

This has been happening to me since I was at school. Sometimes I can see my clothes move in time with my pulse. I had a pile of tests 20 odd years ago and they said everything was fine. The fed me a pile of drugs that didn't make a difference. There was much discussion about PR intervals, P waves, QRS complexes etc, but I haven't died yet, so it seems they are correct. I've never tried tying it down to diet though. Sometimes it happens, and I don't die, so I just go.... ah fek.... not again. Would you rather not know what it was, or be able to put a name to your incurable illness? IMO - there is no difference, and stressing about it won't cure it.


p.s. - The thing that really pissed me off was that they put me on beta-blockers at one stage, and I was still crap at snooker.....


p.p.s. You have to be quite old to get that... Neil Foulds I think?

vindaloo

The fat canadian - Bill Werbenik (sp).

fast bloke

You sure? - Was Werbenick not the one who needed beer to be able to function?

Fabioso

None of the investigations have really been carried out under one specific hospital. I've been to the QA in Portsmouth, Portland in London, SPIRE Portsmouth and RVI in Newcastle (Newcastle only cos I couldn't find anywhere that does the PFM locally although subsequently found out that might not have been true....well got at least to see probably one of the most open minded endocrinologist there out of all of the ones I have seen).

Only other drug I have taken is antihistamine occassionally for hay fever.

Fabioso

The only reason Im desperate to sort it is because when its up at 130-160 it basically renders me immobile and being like this at work is not something they are going to keep putting up with. I've been able to reduce the effect at work by eating only small amounts of very bland, proven food but this is leaving me knackered and lightheaded by the end of the day due to the lack of calories, as I'm not eating enough. In the medium/long term, it isn't really a very workable solution. I'm terrible at snooker

fast bloke

It never stops me from doing anything. The docs attached a machine to me for a few days that recorded BP and pulse. I got the occasional reading that indicated I should soon be needing a box to be buried in. When it happens now, I might get a bit light headed. I can feel it starting, so I tend to get down from ladders post haste. The other thing that happens to me is getting massively shaky hands..... like unable to hold a cup or drink from it. Usually only lasts for a few minutes. If it went on for a couple of hours then I would be unable to do anything useful. Being told there is nothing wrong probably isn't that helpful if you can't work while 'nothing is wrong'