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Mum just dropped a bombshell "found a lump"

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Old 20 July 2010, 08:56 AM
  #391  
Leslie
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Sorry to hear about the problems Snazy, hope it all gets cleared up soon.

I sincerely hope your sister will think about your mum just for once too.

Les
Old 20 July 2010, 11:03 AM
  #392  
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Cheers guys, got word this morning that the drain is working fine now, so the pressure dressing has obviously helped. Got a text from mum this morning to say she has been up to use the loo and feels like an old woman now, bless her.

I can't quite figure my sister out. Ok visiting time is two till eight, so a bit awkward wit the kids bring at school. But there is a twist. Her other half just lost his job, laid of for medical reasons, so he can pick them up from school no problem, AND could have the little one too. But according to my sister the baby "plays up" if she is not there. GET A GRIP!!

She has decided now that she is going from two till three, but I can bet for sure she will take the baby in, even though the nurses have advised against it. Does not seem to understand that they are not saying it incase she brings illness IN, but rather incase she picks something up. Got a long text off her last night whining on that the kids are in good health so pose no risk. OMG

So back on track, mum is on the mend now, no more complications at this point. Going to see her a little later, and hope to get a clearer picture of what was actually done in theatre a d if anything else remains to be done.

Thanks for all the messages.
Old 20 July 2010, 12:14 PM
  #393  
Leslie
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Good news about your mum Snazy, give her my best wishes even if she does not know me.

It would serve your sister right if they turned her away with the baby, safer for the baby too as you say.

Les
Old 20 July 2010, 12:29 PM
  #394  
mart360
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Glad everything went ok


Mart
Old 20 July 2010, 02:31 PM
  #395  
Snazy
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Cheers Les, I will be sure to

Sadly I dont think they will turn her away. Just cant believe the situation. Cant leave the baby with dad because she does not like being seperated from mum. The future is bright ! Once again its the pure selfishness of it all that leaves me astounded.

It would not suprise me if she takes him on the ward too, even though I have warned her that as mum has had a breast op, her dignity is "impacted" shall we say, so her top slips down from time to time. Last time i said DONT take Dave with you, for a delicate PERSONAL conversation with mum, I got home to find her, Dave and all the kids all sitting round a very silent mum.

Gonna head up there in a little while, in between her lunch, doctors rounds, dressing changes etc lol.

Cheers Mart
Old 20 July 2010, 02:49 PM
  #396  
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Mate, if it helps, I had a similar situation. We had to get eldest back from Thailand quickly to see his mum. I knew the little turd would turn the whole thing round to be about him- which is exactly what he did.

My point is that we all have our own way of dealing with things, our own way of thinking we know whats best. I didn't want him near the hospital after the op in case he took something in- I have a reasonable idea what he's been up to in thailand for the last three years.

We had the good news yesterday that, to all intents and purposes, she's now cancer free. The CT has shown possible issues with her ovaries and liver, but they said they're going to do an MRI and from what they can see so far both are benign.

We now have the chemo schedule- 6x 3 week sessions of FEC, the 6x 3 week sessions on something else (dox... the name escapes me) then a bit of radio.

Most importantly they've told us that they're doing it as a precaution and not treating cancer...

The wife doesn't see it as good news, but, personally, I think its about the best news we could have hoped for.

I hope yours turns out similar mate, I really do. Don't get bogged down with how other people are dealing with it- try and hold your own and just let them get on with it provided its not mentally or physically detrimental to your mum.

Best regards.. Simon.
Old 20 July 2010, 03:25 PM
  #397  
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Excellent news Simon, thats great to hear, congratulations to the family, and bless to the hospital and oncology world for their advances to save our loved ones.

Good luck to the wife with the chemo. Can sometimes be more disruptive than the news and surgery part. I hope its as painless as possible for her. Will keep my fingers crossed. Please do give updates (if you care to) on the thread with how she is managing. As I have found, sometimes sharing things not only helps the mind, but gets good info and ideas too.

Im used to my sister and her stupidty or as you call it, her way of dealing with it lol. But she still never ceases to amaze me with her decisions, and actions from time to time.
Just got a text from her to say while visiting mum in the hospital mum wanted to get up and walk about so she let her, ripping the drain out in the process. Ho hum, didnt think of asking a nurse to help and decide if she could get up then.
Old 20 July 2010, 06:11 PM
  #398  
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Just with mum now, and just wanted to share this gem.
Excuse the formatting, its cut and paste from a message I sent someone.

My mum is speaking to her sister who she didn't tell about the cancer, let alone the op. Telling her that she didn't answer her phone call on the house phone last night because she is deaf and didn't hear it. And that she was in all evening. Unfortunatly my sister spoke to her earlier and told her where mum was, so mums sister KNOWS she is lying to her. Its funny listening to the conversation with my mum responding to questions from her sister, making out she is at home now, and has been doing things. Meanwhile her sister knows the truth. This is prize comedy stuff.
Old 20 July 2010, 11:08 PM
  #399  
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Looks like she'd doing well

by the sound of it, she's going to be running rings round you when she gets home


Mart
Old 20 July 2010, 11:16 PM
  #400  
Snazy
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Originally Posted by mart360
Looks like she'd doing well

by the sound of it, she's going to be running rings round you when she gets home


Mart
Lol not sure about running rings, but driving me mad for sure lol.
They are just monitoring the inflammation and blood loss now.

Up side is the nurse looking after her is rather lovely lol
Old 21 July 2010, 12:16 AM
  #401  
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Glad things seem to be looking on the up for her, Snazy. As for your sister, I think RRH has a point. Everyone has a different way of going on and I think things are hard for you as you have had such involvement in all of this and your sister hasn't taken the same role.

It certainly isn't ideal her taking children with her, nor her bloke, but at least she has turned up. She obviously looks at things differently to you (much the same as the whole me and my brother situation) but to some extent it's easier all round to step back and not focus on what the other is doing. Unless your Mam becomes distressed just accept your different ways of acting. (at least in terms of while she is hospital) You getting worked up won't be helping how you feel to start with. Things like his can be just as tough on family as the person going through the cancer and related treatment/care.

I keep my fingers crossed for a good recovery for her.
Old 21 July 2010, 12:32 AM
  #402  
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RRH, that sounds like really good, positive news. I hope the MRI confirms what they believe and your wife can move forward with the treatment, not worrying about anything else other than getting through that.

I can understand how she feels, not because it isn't good news but she has gone through all of this so far and naturally she is worried about any other problems and she won't settle until she has a definite answer. It's understandable considering. I think sometimes, once you have had cancer, any other issues that come along, you will think the worst and until you know for sure that fear is always there. (by that, I don't mean you don't understand wha she is going through, but as you said earlier people have their own way of dealing and looking at things).

All you can do is love and support her and be there for her whatever she is feeling, which I'm sure you are already doing. She will be scared, and as much as she needs reassurance everything will be ok, she needs understanding for how she feels, which if my experience is anything is to go by, can change quite often.

I send my love to you both and hope her MRI is fine and her treatment goes well and is as painless as possible. xx
Old 21 July 2010, 09:31 AM
  #403  
Leslie
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All sounds good Snazy, delighted to hear it and was having a laugh about her talking to her sister. Hope she gets home soon anyway, as long as she is fit enough of course. Think you need to keep your sister away somehow! You are right, my description of her was well below the truth.

Also very pleased to hear your news Simon, its a worry waiting for results as I know well enough.

Les
Old 21 July 2010, 09:44 AM
  #404  
Snazy
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Waiting to hear something from the hospital at some point. Breakfast and doctors rounds should be over in an hour or so,so waiting to to hear if she is coming home or not.

I have bought her a day bed from someone in Eastbourne, so have to pick that up yet. Once I know what's happening witness her coming out I can plan my trip.

Busy day of running about ahead, but all hinging on the hospital.

Her condition is a lot better, shoved a McDonalds burger down her throat after her poor attempt at eating her dinner, so her appetite is good. Just got to get the ok on her swelling on the op site, and getting her sats up.
Old 21 July 2010, 05:23 PM
  #405  
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Good news Snazy. Not surprised she liked the burger, I found I could not stick the hospital food.

All the best to you and her.

Les
Old 21 July 2010, 07:26 PM
  #406  
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Right well final update of this chapter really.

Mum is home now, I picked her up this afternoon. Decided on the train home. Nice and steady, not packed out. Gave mum the feeling of freedom and stopped me making feeling like I am wrapping her up in cottonwool.

She is a bit sore, pretty tired and a bit hungry. Bumped into her other half and the two eldest kids on the way home from the station, walked with them for a few minims then parted. My sister had an appointment. On getting home I text her to say mum is home, saw the kids. She replied saying that she was going to come round but would leave it.
My thoughts, being a caring guy lol, were that she only has the baby with her, and mum would like to see then for 5 mins on her way home. So I text back saying don't be silly, pop round for five.

She replied saying Dave was picking her up so they would swing by. Seeing disaster on the horizon, I text back saying prob better to just go on her own, incase mum wanted to talk girly stuff after the op and all.
Ten mins later I get a text, laughing saying in short, oh no, we are all going round there, I'm not going on my own.

I got back from the shops over an hour later to find them all STILL there. Annoyed, pissed and upset is what I am right now.I apologized to mum for my **** up. She was knackered by the time they left.

New rule for me, don't try and advise my sister on etiquette, it's pointless and just gets me wound up!

Other than that, she is doing well, finally admitting she can't do everything she used to, suddenly not keen on smoking but doing it for her fix. Appointments Monday and Tuesday for follow ups on the surgery, and got to take her straight in if there is any bleeding, swelling or pain.
Turns out she HAD ripped the drain out yesterday, which was what caused the bleed to appear to slow down.

I will be watching her like a hawk.
Old 21 July 2010, 07:26 PM
  #407  
Snazy
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Right well final update of this chapter really.

Mum is home now, I picked her up this afternoon. Decided on the train home. Nice and steady, not packed out. Gave mum the feeling of freedom and stopped me making feeling like I am wrapping her up in cottonwool.

She is a bit sore, pretty tired and a bit hungry. Bumped into her other half and the two eldest kids on the way home from the station, walked with them for a few minims then parted. My sister had an appointment. On getting home I text her to say mum is home, saw the kids. She replied saying that she was going to come round but would leave it.
My thoughts, being a caring guy lol, were that she only has the baby with her, and mum would like to see then for 5 mins on her way home. So I text back saying don't be silly, pop round for five.

She replied saying Dave was picking her up so they would swing by. Seeing disaster on the horizon, I text back saying prob better to just go on her own, incase mum wanted to talk girly stuff after the op and all.
Ten mins later I get a text, laughing saying in short, oh no, we are all going round there, I'm not going on my own.

I got back from the shops over an hour later to find them all STILL there. Annoyed, pissed and upset is what I am right now.I apologized to mum for my **** up. She was knackered by the time they left.

New rule for me, don't try and advise my sister on etiquette, it's pointless and just gets me wound up!

Other than that, she is doing well, finally admitting she can't do everything she used to, suddenly not keen on smoking but doing it for her fix. Appointments Monday and Tuesday for follow ups on the surgery, and got to take her straight in if there is any bleeding, swelling or pain.
Turns out she HAD ripped the drain out yesterday, which was what caused the bleed to appear to slow down.

I will be watching her like a hawk.
Old 22 July 2010, 09:03 AM
  #408  
Leslie
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Can't believe your sister, she is either gust bustingly thick or totally selfish!

Hope all keeps going well for your mum.

Les
Old 22 July 2010, 10:03 AM
  #409  
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lol my exact sentiment Les. I askend my other half which she thought last night.
I have decided stressing about it is not good for me, so trying to put that one to bed.

Found mum sleeping on the sofa last night exhausted and could not lay down. I have got her a daybed ordered but waiting to hear when I can collect it now. Trying to establish what she can and cant do now, so I can work out a help plan for her.

Had a good read of a MacMillan leaflet yesterday which was a great help to me personally, and gave some great ideas for us right now.
Old 22 July 2010, 11:40 AM
  #410  
Leslie
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Yes Snazy, you will find the MacMillan nurses very much of a help to you and your mum. You will need a great deal of positive help to give you a bit of a break.

Les
Old 24 July 2010, 12:21 AM
  #411  
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Not sure why I am updating other than being really pissed off.

Basically, she went for the MRI on Monday morning. At the time she was told the person that looks at these particular ones was on holiday, but her consultant may be able to look at the scan. She had previously been told once she recieved the MRI app. date she should contact the breast cancer unit to let them know so she could have an appointment with them organised.

Given that we were at the hospital anyway, we popped around to let them know she'd had it. Come Tuesday she gets a phone call to arrange an appointment for today. She said at the time this guy was on holiday, and all she got was 'he'll be back by then'. Being honest (and before she told me exactly what was said), I panicked about the appointment being so soon.

Anyhow today comes and we go off to the hospital. She got really distressed while we waited to be seen, I tried my best to make conversation to keep her distracted but it didn't really help. 25 minutes after her allocated time she gets taken in, getting more and more worked up (I waited outside, her choice and I respect that), and what was said to her.... 'don't look so glum, nothing to report' ... her first thought was relief that nothing was seriously wrong until it transpired there were no results back. He said he was going on holiday so an appointment would be arranged for when he was back (3 weeks time), she even said she was supposed to be going away to which she got the comment that they could both enjoy their hols before getting the results. **** me, how is she really supposed to do that with this hanging over her head.

I am so angry for her. Granted she could have waited longer just for the scan, but that isn't what has upset either of us (esp.her), it's the fact she was so wound up and emotional today, only to find out nothing. I sometimes wonder if consultants and nurses realise how stressful times like this can be. It wouldn't have been so bad, but she told the cancer nurse directly that the bloke was away, there is just a total lack of communication in that place. Why not just phone back and tell her no results will be back and schedule another appointment rather than put her through what was like torture.

I'm sorry for ranting but I'm so pissed off right now . And to add insult to injury, my work are being ***** about me taking (hols) time off to go with her. FFS now she is saying not to worry about me going to her new appointment in case it causes hassle at work, **** them quite frankly, she is way more important.

Sorry again.
Old 24 July 2010, 09:25 AM
  #412  
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I am very sorry to hear about that sort of treatment. Can't believe that the results are unavailable in a case like this which is so important. I can understand the effect it must have and it really is most unfair.

His remark about them both enjoying their holidays before the appointment is totally selfish and uncaring. At the very least there must be someone their who could look at the scan and put your mother's mind at rest. I don't believe that it would have been too difficult for him to do that himself before your mother's appointment this time anyway.

Shows complete lack of thought for your mother

Les
Old 24 July 2010, 11:13 PM
  #413  
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Crikey how very detached that seems from compassion.
Sorry to hear you had such a crappy time, hope it all gets sorted out soon.

We have been delighted with mums specialistm been very lucky.

Slightly bewildered with the after care though. When discharged she was told to go to Guys on Monday for a checkup, that was then changed to Lewisham on Monday. We got a letter the day she was discharged saying an appointment had been made for Tuesday at Lewisham, but no mention of the op.
Called the hospital yesterday to see if we can do both appointments at the same time, and there was no one available to arrange this with. Same department, two appointments, and we wonder why waiting lists are so long !

On another note, just got back from Eastbourne where I picked up a day bed for her. she can't lay down properly at the moment, so I got her one she can lay on in one of three positions. Bargain but a hell of a round trip lol
Old 24 July 2010, 11:48 PM
  #414  
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Guys, thank you for your wishes.

I have come to the conclusion hospitals are crap, well at least ours. Seems like we aren't alone though as you say Snazy, you are having a bit hassle too. It's not what anyone needs at times like this.

Twice recently I have gone to the hospital for appointments arranged well in advance only to turn up and them not to even have my notes. I'm still waiting for blood test results to come back from March. With everything that has gone on with Mam of late, I can't be bothered to chase them about my (less important) problems. I just want her to be sorted, hopefully it will be good news, I so wish for that. 3 weeks from now and we should have some info.

Snazy, I really hope your Mam becomes more comfortable soon. Good on you for getting her a decent bed for now while she recovers. You really do look out for her, credit to you for that.
Old 25 July 2010, 08:52 AM
  #415  
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I reckon it is all down to where you live. The locals here in Devon have a less "modern" outlook on life I am glad to say and in our hospitals they all work hard for the patients to make them as comfortable as possible in spite of the shortages etc. They were always very good to me in the times I have been in. The hospital my mum was in near London was dreadful in comparison, total lack of care!

Les
Old 25 July 2010, 11:00 AM
  #416  
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Snazy, good to know Mum is home and on the mend, as such.

Lisa,
I despair the way some Doctors can be. I wonder if they would be so laid back if it was themselves in your Mums situation. Waiting for results is a very worrying and trying time.
I know from my own Mums experience.
Digressing a bit, I once watched a film called "The Doctor". His attitude to his cancer patients was apalling, until he got Cancer himself. Maybe this film should be shown to all Consultants
Fingers crossed for good results for your Mum xx
Old 25 July 2010, 02:05 PM
  #417  
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Originally Posted by Lisawrx
Guys, thank you for your wishes.

I have come to the conclusion hospitals are crap, well at least ours. Seems like we aren't alone though as you say Snazy, you are having a bit hassle too. It's not what anyone needs at times like this.

Twice recently I have gone to the hospital for appointments arranged well in advance only to turn up and them not to even have my notes. I'm still waiting for blood test results to come back from March. With everything that has gone on with Mam of late, I can't be bothered to chase them about my (less important) problems. I just want her to be sorted, hopefully it will be good news, I so wish for that. 3 weeks from now and we should have some info.

Snazy, I really hope your Mam becomes more comfortable soon. Good on you for getting her a decent bed for now while she recovers. You really do look out for her, credit to you for that.
Yeah I have to say there are certainly some moment when you wonder WTF!

It was a nice day for the drive to eastbourne and only took four hours round trip, including stopping for petrol, dismantling the bed, loading it and driving home again, A roads all the way home.
41mpg made it nicer lol. Good little Picasso, I will miss it.

She loves the bed, said she slept really well on it, and as it's in the living room she can have some freedom, her bedroom is really not a good place for her, so happy she is out of it.
I do my best with what I have available to me to take care of. My current grade "good effort, could do more" lol

Originally Posted by Lee247
Snazy, good to know Mum is home and on the mend.
Cheers she is in much beter spirits now and eating like a pig lol
Old 26 July 2010, 10:55 AM
  #418  
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Grrrrr bloody mothers!
OK so mum was discharged last week after the complications on the proviso that she went in for a check up today. No appointment made, just show up for the clinic.

Because she got a letter saying she has another appointment tomorrow, and she is in a bad mood today, she cant be bothered to go and get checked out today. Saying they can do it all tomorrow.

I have two problems with this.
1/ they would not have said today if they meant "some time next week". She has a post op wound that needs looking at, cleaning and dressing.
2/ if she shows up to see the consultant tomorrow and its all gunky, they will need to clean it up, dress it etc before he can see her. Which causes delays for the clinic. The same clinic she moans about running late!

Going bloody mad right now. Need to know what to tell work, want mum checked out, and waiting on a call back from the nurse before I can do either of the first two.

Looks like the cycle of PITA and being awkward has started again.
Old 26 July 2010, 01:24 PM
  #419  
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Sorry she is being so difficult Snazy. Apart from explaining it all to her and how so many others are affected I don't know what you can do.

Hope its just a one off and that she comes round to being less awkward.

Les
Old 27 July 2010, 09:18 AM
  #420  
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Originally Posted by Leslie
Sorry she is being so difficult Snazy. Apart from explaining it all to her and how so many others are affected I don't know what you can do.

Hope its just a one off and that she comes round to being less awkward.

Les
Les, it's definatly not a one off, she has a habit of doing this when she decides she can't be bothered.
Thankfully the hospital called back and I have arranged to get it all done today, by taking her in earlier to let the nurses see her before the consultant.

Another milestone today I guess, once the specialist has decided if they are happy with the outcome.


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