Parkinson's disease.....so cruel
03 June 2014, 11:07 PM
#1
Scooby Regular
Thread Starter
Parkinson's disease.....so cruel
My dad lost his 25 year battle with early onset Parkinsons disease today and it was such a cruel thing to watch.
As with all the related diseases that rob people of their motor functions, it was awful over the last few months to watch stage 5 Parkinson's take his speech, voluntary movement and dignity.
Complete inability to be able to tell anyone where his pain was (he'd also suffered a broken neck amongst other injuries during a fall a few months ago) or what he wanted or needed, was so frustrating for him and those around him. Losing the ability to communicate with a parent is real tough.
As always with Parkinson's, you die with Parkinson's but not because of it. Cause of death on certificate listed as Pulmonary Embolism.
Sorry to put a downer on things but I guess it helps sometimes to write things down.
No more pain Dad
RIP
As with all the related diseases that rob people of their motor functions, it was awful over the last few months to watch stage 5 Parkinson's take his speech, voluntary movement and dignity.
Complete inability to be able to tell anyone where his pain was (he'd also suffered a broken neck amongst other injuries during a fall a few months ago) or what he wanted or needed, was so frustrating for him and those around him. Losing the ability to communicate with a parent is real tough.
As always with Parkinson's, you die with Parkinson's but not because of it. Cause of death on certificate listed as Pulmonary Embolism.
Sorry to put a downer on things but I guess it helps sometimes to write things down.
No more pain Dad
RIP
03 June 2014, 11:15 PM
#2
Scooby Regular
Join Date: Apr 2012
Location: weymouth
Posts: 995
Likes: 0
Received 0 Likes
on
0 Posts
I'm so sorry to hear this my friend
I lost my mum to cancer in 2012, to watch a loved one suffer daily is truly heartbreaking.
Life can be so cruel.
Your dad is at peace and pain free now.
RIP Dad.
I lost my mum to cancer in 2012, to watch a loved one suffer daily is truly heartbreaking.
Life can be so cruel.
Your dad is at peace and pain free now.
RIP Dad.
Trending Topics
04 June 2014, 12:20 AM
#10
Scooby Regular
So sorry to hear this. My heartfelt condolences to you. I know how tough it is to see a parent in pain and suffering. I hope your time coming to terms with this includes the support you need, my thoughts are with you.
T
T
04 June 2014, 10:53 AM
#16
Scooby Regular
Join Date: Apr 2010
Location: Birmingham
Posts: 2,482
Likes: 0
Received 0 Likes
on
0 Posts
Sorry to read this OP. It is crap watching family suffer. It's probably of no comfort to you but at least he doesn't need to suffer in pain anymore
I was in hospital for a couple of weeks last year and shared my ward with a few people who were hit by terminal diseases even though they led a healthy lifestyle. One chap i still remember was an English guy called 'Saleem'. He was in his 40's and wanted to get out of hospital asap as he was due to get married to his girlfriend of 19 years. I asked him out of general curiosity as to why he is choosing to get married after 19 years together. He told me he is expecting to die in a few months due to the cancer in his body. It was difficult to digest that this smiling cheery bloke in front of me has accepted he's going to be die in a few months so is making the most of it whilst he can. Truly saddening.
I was in hospital for a couple of weeks last year and shared my ward with a few people who were hit by terminal diseases even though they led a healthy lifestyle. One chap i still remember was an English guy called 'Saleem'. He was in his 40's and wanted to get out of hospital asap as he was due to get married to his girlfriend of 19 years. I asked him out of general curiosity as to why he is choosing to get married after 19 years together. He told me he is expecting to die in a few months due to the cancer in his body. It was difficult to digest that this smiling cheery bloke in front of me has accepted he's going to be die in a few months so is making the most of it whilst he can. Truly saddening.
Last edited by Shaid; 04 June 2014 at 11:17 AM.
04 June 2014, 01:52 PM
#18
Scooby Regular
Join Date: Mar 2000
Location: Weston Super Mare, Somerset.
Posts: 14,102
Likes: 0
Received 0 Likes
on
0 Posts
Really sorry to hear this Si but I don't think it's "wrong" to think that you are glad in a way as now his suffering has ended. RIP, dad.
It's a s,hit thing to get as it's not a killer in its own right but gradually destroys everything else.
Hang on in there pal.
David
It's a s,hit thing to get as it's not a killer in its own right but gradually destroys everything else.
Hang on in there pal.
David
04 June 2014, 03:28 PM
#19
Scooby Regular
Thread Starter
Hey guys
Thanks for all the really kind posts, it's times like these when the true good folk on scoobynet come to the fore and you remember that there is still a good strong community on this forum.
I'm fine as I was really resigned to this and had effectively lost dad some time ago. Now busy having to deal with the arrangements and more worryingly, with my mum who has Alzheimer's (or dementia, it's just being diagnosed) and keeps asking how my dad is (they split almost 40 years ago). I'm now on my 3rd time of telling her that he's died, so that ain't much fun.
The fun things you have to deal with, being an only child eh ?
Thanks again and make the most of the sunny days
Thanks for all the really kind posts, it's times like these when the true good folk on scoobynet come to the fore and you remember that there is still a good strong community on this forum.
I'm fine as I was really resigned to this and had effectively lost dad some time ago. Now busy having to deal with the arrangements and more worryingly, with my mum who has Alzheimer's (or dementia, it's just being diagnosed) and keeps asking how my dad is (they split almost 40 years ago). I'm now on my 3rd time of telling her that he's died, so that ain't much fun.
The fun things you have to deal with, being an only child eh ?
Thanks again and make the most of the sunny days
04 June 2014, 03:56 PM
#20
Scooby Regular
Join Date: Nov 2012
Location: Grantham
Posts: 1,056
Likes: 0
Received 0 Likes
on
0 Posts
Hey guys
Now busy having to deal with the arrangements and more worryingly, with my mum who has Alzheimer's (or dementia, it's just being diagnosed) and keeps asking how my dad is (they split almost 40 years ago). I'm now on my 3rd time of telling her that he's died, so that ain't much fun.
The fun things you have to deal with, being an only child eh ?
Thanks again and make the most of the sunny days
Now busy having to deal with the arrangements and more worryingly, with my mum who has Alzheimer's (or dementia, it's just being diagnosed) and keeps asking how my dad is (they split almost 40 years ago). I'm now on my 3rd time of telling her that he's died, so that ain't much fun.
The fun things you have to deal with, being an only child eh ?
Thanks again and make the most of the sunny days
just how much can one person take. I wish I had something sensible to say but words fail me, just left with a few tears now stay strong Si.
04 June 2014, 05:59 PM
#24
Scooby Regular
Thread Starter
I guess that friends and family is all that really matters in the big scheme of things.....value them lots.
04 June 2014, 06:15 PM
#26
Scooby Regular
iTrader: (4)
Join Date: Mar 2009
Location: nr leeds
Posts: 2,473
Likes: 0
Received 0 Likes
on
0 Posts
Sorry guys, really don't mean to write posts that are upsetting to others. On the contrary, I hope it helps and encourages people to make the most of things, value their health and not get caught up in petty squabbles or waste time on the less important things.
I guess that friends and family is all that really matters in the big scheme of things.....value them lots.
I guess that friends and family is all that really matters in the big scheme of things.....value them lots.
sorry for your loss
04 June 2014, 06:36 PM
#27
Scooby Regular
Truly sorry to hear your terrible news. I can appreciate how you are feeling as I have lost both parents over the last few years, one to dementia and the other to COPD.
RIP all.
RIP all.
04 June 2014, 07:54 PM
#28
Scooby Regular
Thread Starter
