It must be pretty terrible for you as well as her Snazy. Thank goodness your sister is sort of moving her backside to help you.

Hope you get some reasonable news from the GP.

Les

 

GP has worked on the basis of a urine infection, then wants to monitor to see if the anti b's help. Sadly in the past few hours things have seriously deteriorated and she is now left in a very distressed state. Lashing out at the carer, being at the point of crying, and unable to stand.

She has been muddling with going to the loo for the past hour now, so we are waiting on the GP to call back with info on if he can get her back in the hospice tonight.

In the meantime, I blogged all I can.
www.michaelsnasdell.co.uk

 

Hi mate,

So sorry to hear what you are going through. I have been going through something similar since 2009 when my mum was diagnosed with cancer. After the initial surgery to remove the tumour followed by chemotherapy, cancerous cells were found in her kidney, which was then removed by surgery. A few tests and what felt like years later, she has been given the all clear with the exception of yearly blood/urine tests.

I think your blog is an amazing idea to kind of keep a journal of how you feel, how the treatment is progressing and one which should be highly commended.

I am sure she is in the most capable hands and has you and your family to support, and in turn, im sure you can count on the scoobynet user base for support :-)

 

Read your Blog Snazy.

I am sorry that you and your mum are going through such a bad time. Its a very good thing that she is back in the hospice of course. The disease is obviously affecting her more now and they will be able to do more to ease her problems.

I hope it all settles down a bit more for you and her now.

Les

 

Scooby_doo, excellent news about your mums experience with cancer, glad she made it through ok. Amazing what they can do with medicine these days.
Thanks for the comments on the blog, it certainly helps me get it all out and off my chest.

Well a week or so in, and mum is doing a bit better again, no more eposides of severe confusion which is good to see. However a lot of less worrying confusion continues, getting muddled with content of conversation, and what arrangements are being made for her.

I went for a chat with mum and the doctor yesterday. Sadly my sister had stayed for 3 hours on her 1pm visit, so had only just left when I arrived, leaving mum quite irritablen for the meeting. Strange part is my sister text me 50 mins into her visit saying mum seemed quiet and she was sure mum just wanted her to leave..... yet stayed another 2 hours with her boyfriend and the 4 kids.... Nice!
Anyway, mum was a little irritable for the meeting, so was not too constructive about the matters discussed, but I think between me and the doctors we managed to discuss the important things.

It looks like they will be trying to get mum home at some point next week, once things are all sorted out and she is ready to try at home again.

Health wise, they feel that the mild confusion is now being caused by the tumour, and is likely to remain, as well as getting a little worse over time.
So lets see what happens from here on in.
Incredible to believe that this has been going on for coming on 3 and a half years now. You can tell from my earlier posts that I really didnt expect mum to hang in there that long, but as so glad she has, and so grateful to the medical people for keeping her going.

So the latest updates are appearing in the blog now.... Another entry will be in by about 2pm.

www.michaelsnasdell.co.uk

 

Glad to hear she is doing better Snazy, and how long it is since it started. She has been doing very well for that length of time.

My best wishes to you both.

Les

 

glad your ma s feeling better take care

 

Hey Nick, how you keeping mate?
Just updated the blog, got mum enrolled in art classes, so she is happy now

 

im alright the wifes not so good on anti depressents can read your blog but cant post

 

Guys, girls... its twelve months today since the wife had her first op.

Since then, she's had chemo, radio, a hysterectomy and another cyst removed, but we're doing good. Really good.

The tamoxifen, however, is another story. Hot flushes, paranoia, depression; she's an absolute nightmare to live with, but she's still alive and looks like she's fixed!

I've spent the last twelve months doing stuff for charity to keep me occupied, and to try and put something back in, as everyone's been so great. To date I think I'm approaching £7500 raised for various cancer charities. This weekend, I'm doing a triathlon- in a morph suit - for leukaemia and lymphoma research. Its made the front page in the local paper and hopefully me making a twit of myself will help raise money and awareness. If anyone fancies sponsoring me a quid - which is all I've asked anyone for - let me know and I'll send you the link to the justgiving page. I don't like to post it on here as its not my thread and it just wouldn't be polite.

All the best everyone
Simon

 

Simon,

Likewise its just over 12 months since my wife had her op as well. And again like your wife she had chemo , radio and major surgery. Difficult times. Thankfully things are looking really good here as well and were hoping that that wont change in the future.

Great to see your raising money for charity as I and the kids did too though not quite £7500.

Hope all is well in the future for you and anyone else who has to put up with this horrible disease.

At least I can use the washing machine and tumble drier now

Chip

 

Simon and Chip. It's absolutely fantastic news for both of you and obviously your wives.

No doubt it has been a tough year, but it looks like you are all coming out the other side stronger. And of course Chip has a new skill now

Simon, credit to you for your fundraising, it's some figure to date * Oh, and the tamoxifen, it doesn't have the nicest of side effects (my Mam was on that originally), but it's best to take the rough with the smooth to hopefully keep her safe in the future. That said, if she is struggling, it may be worth speaking to her consultant to see if there are any suitable alternative medications available to try, but they may still have their problems (Mam is on her third type of med now for one reason or another). It certainly is probably worth her discussing any concerns, aftercare is equally important as initial treatment.

Anyhow, I wish you all well and hope that with every check-up, comes good news.

*And Chip too, I posted and then realised I missed that you had been fundraising too, sorry.

 

Thanks Lisa, and I may be able to use the washing facilities but when we do get a nice sunny day and I use the washing line then I just can't seem to hang things as required. That must be one of the things only you wimmin can do right

Chip

 

I think it is an 'art' passed down through the generations, as I used to get told off for doing it wrong when I was younger. I still don't think I have got the knack of it.

 

Hope everyone can "Take Hart" from your news and your efforts.

 

For some reason which I don't understand, you mustn't leave the clothes pegs on the line when you take the washing off the line!

Les

 

Ahh Les I can answer that one for you and to be honest you really should have known this.
The reason is because if you leave the pegs out the little steel springs between the two pegs will oxidise and therefore when you hang out your wifes frillies they will get rust stains on them which I am sure you will agree is totally unacceptable

Chip

 

All becomes clear thanks Chip, but I wonder why Mrs Leslie did not seem to be able to explain it to me!

One thing she is not is too shy to mention rusty frillies!

Les

 

And if they are plastic and stay open to the elements too long, they will go all brittle and snap. I learned that the hard way.

 

Had to have the last word didn't you

Chip

 

Yes

 

Well, you live and learn!

Les

 

Well I guess its been a long time, and an update is overdue.
I will keep it brief as the blog really says it all.

Jack will be pleased to hear I am on stronger medication for stress and anxiety now, and still off work. Possibly about to start claiming benefits for the first time ever really.

Mum, well she has been in and out of the hospice now, condition not really changing too much, still wobbly, chesty and a little confused.
Last week we finally moved her into a local home. Its been a long time coming, but has reached the stage where home is no longer the right place for her. Her needs have increased too much.

She isn't settling too well yet, feeling its short term, and that once again they can't be trusted with her meds.

So the long version of all this is in my blog...
www.michaelsnasdell.co.uk

 

Were all thinking of you snazy


Mart

 

Just read this thread and your blog for the first time today,chin up fella

I hope everything gets better for you both.

 

Tough thing, cancer. Anyway, thoughts and prayers with all those suffering. X

 

PM for you Michael.

Les

 

Well things are changing again, not for the better either.
For an update please feel free to check out my latest blog entry.
http://michaelsnasdell.blogspot.com/...ities.html?m=1

The abbreviated version is, heading downhill, bed bound, and sleeping most of the time
On oramorph for her breathing, and not a happy bunny.

Might seem a bit crass to some but thought I would share this pic anyway.
So much has been talked about mum on here, so meet mum..

 

Sorry to hear that Snazy difficult to know what to say in these situations, I cant stand hopeless optimism as I find it a bit of an affront to my intelligence but hope she is as comfortable as possible and that you are bearing up.

 

Same here mate, hopeless optimism just builds you up for a bigger fall.
She is in a little discomfort at the mo, but they are working on that with the doctor. Other than that she seems ok. Chatty when she is with it, and likes a good hug Years since we had hugs like that.