help needed to find top cancer specialist...
25 March 2006, 04:07 PM
#92
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Anywhere between 6 months to a year SS, I'll find out on Wedbesday.
There is a drug called Avastin which is licensed for trial in this country. It works by cutting off the links from the tumour to the blood supply and that slows down and shrinks the tumour which cannot live without a blood supply. I may be able to get it during my Chemo as part of a trial. It is supposed to be pretty effective. Might be worth asking your Mum's oncologist about it SS.
Glad to hear she is feeling better.
Les
There is a drug called Avastin which is licensed for trial in this country. It works by cutting off the links from the tumour to the blood supply and that slows down and shrinks the tumour which cannot live without a blood supply. I may be able to get it during my Chemo as part of a trial. It is supposed to be pretty effective. Might be worth asking your Mum's oncologist about it SS.
Glad to hear she is feeling better.
Les
25 March 2006, 04:15 PM
#93
Originally Posted by Leslie
Anywhere between 6 months to a year SS, I'll find out on Wedbesday.
There is a drug called Avastin which is licensed for trial in this country. It works by cutting off the links from the tumour to the blood supply and that slows down and shrinks the tumour which cannot live without a blood supply. I may be able to get it during my Chemo as part of a trial. It is supposed to be pretty effective. Might be worth asking your Mum's oncologist about it SS.
Glad to hear she is feeling better.
Les
There is a drug called Avastin which is licensed for trial in this country. It works by cutting off the links from the tumour to the blood supply and that slows down and shrinks the tumour which cannot live without a blood supply. I may be able to get it during my Chemo as part of a trial. It is supposed to be pretty effective. Might be worth asking your Mum's oncologist about it SS.
Glad to hear she is feeling better.
Les
hope its the short option you get
i read about that drug and it was tested on lung and bowel cancer during trials and had great results. it is being pushed forward for breast cancer treatment, but no mention that it could be used for lung cancer now. we are seeing mums oncologist on Monday for her results and to see if she can have this 16 day radical radiotherapy and i will ask if mum can have it. if treatment is an option she will start it in a few weeks, keep me informed if the drug is working for you. do you know if you get immediate results?
26 March 2006, 04:20 PM
#94
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I'll let you know what I find out SS, the trial is being financed by the company which produces the drug so it costs the NHS nothing. As fer as I know it will work on any cancer and has shown good results in the States.
Les
Les
27 March 2006, 06:57 PM
#95
Originally Posted by Leslie
I'll let you know what I find out SS, the trial is being financed by the company which produces the drug so it costs the NHS nothing. As fer as I know it will work on any cancer and has shown good results in the States.
Les
Les
mums cancer is too advanced for her to be able to have Radical Radiotherapy, it would only make her ill. chemo isnt an option either. she is allowed to have normal radiotherapy but this will not extend her life just make it more bearable. it is unlikely that mum will be here after xmasthe cancer has spread to her neck lymph nodes as well as the chest nodes and the pulmonary artery is under pressure as the tumour is strangling it. things couldnt be more **** really
Les... i asked about that drug and was told that it has killed a lot of patients during trials.it apparently makes the lungs bleed as well as other stuff, but i suppose it works for some and not others. hopefully your situation is a lot different.
i dont know how to feel atm, ive cried loads but now i feel numb.
on a lighter note we had a fantastic mothers day, one i will treasure for ever
27 March 2006, 07:04 PM
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Originally Posted by sarasquares
i dont know how to feel atm, ive cried loads but now i feel numb.
Charlie.
27 March 2006, 07:04 PM
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Sorry to hear your news Sara. I think most people have had their lives touched in some way by Cancer. My thoughts are with you and your mum. Make the time you have together as special as it possibly can be.
27 March 2006, 07:06 PM
#98
sara
i feel for you and your family at the moment - I guess this is another of those low points that we are told about
I hope you find comfort with all the well wishers on here, as I do, this does not have to be a lonely process and one best shared to help understand our own feelings.
My mum is in the same position and will most likely not make christmas too although we will and are doing the best that we can to make every day until the end like its own mothers day - that way she has another 100, 200, 300 whatever mothers days to come
and everyday we think about her.
Numb is a good way to express it - to a degree i guess we deal with this in stages and each one is a new experience that we have to learn to deal with.
i feel for you and your family at the moment - I guess this is another of those low points that we are told about
I hope you find comfort with all the well wishers on here, as I do, this does not have to be a lonely process and one best shared to help understand our own feelings.
My mum is in the same position and will most likely not make christmas too although we will and are doing the best that we can to make every day until the end like its own mothers day - that way she has another 100, 200, 300 whatever mothers days to come
and everyday we think about her.Numb is a good way to express it - to a degree i guess we deal with this in stages and each one is a new experience that we have to learn to deal with.
27 March 2006, 07:22 PM
#99
yep this is definately one of those low points. we had such a great time over the weekend and as mum was so well and full of life we fooled ourselves into thinking she would be well enough for the treatment...how wrong can you be
i know i will feel better in a few days, its just so much to take in. we havnt given up fighting and are in the process of booking a holiday before the radiotherapy starts......a tan always makes you feel better
i am keeping my fingers crossed for your mum
i know i will feel better in a few days, its just so much to take in. we havnt given up fighting and are in the process of booking a holiday before the radiotherapy starts......a tan always makes you feel better
i am keeping my fingers crossed for your mum
27 March 2006, 07:36 PM
#100
Pontificating
Hang on in there Sara
It was nice to read you had a fantastic Mothers day, I've been keeping tabs on this thread since day one and my heart goes out to you and your mum there's nothing I can say that hasn't already been said by others.
I'm one of the lucky ones that survived cancer and I work with 3 others that have survived, it's a ****ty disease and it still haunts me now over 8 years later, the slightest ache and you think its back. There's always hope as the survival rate is much higher, I hope for your sakes your mum can join the long list of survivors, try anything, natural stuff, hands on healers, whatever, never give up!!.
Good Luck
It was nice to read you had a fantastic Mothers day, I've been keeping tabs on this thread since day one and my heart goes out to you and your mum there's nothing I can say that hasn't already been said by others.
I'm one of the lucky ones that survived cancer and I work with 3 others that have survived, it's a ****ty disease and it still haunts me now over 8 years later, the slightest ache and you think its back. There's always hope as the survival rate is much higher, I hope for your sakes your mum can join the long list of survivors, try anything, natural stuff, hands on healers, whatever, never give up!!.
Good Luck
27 March 2006, 07:41 PM
#101
Originally Posted by Funkii Munkii
Hang on in there Sara
It was nice to read you had a fantastic Mothers day, I've been keeping tabs on this thread since day one and my heart goes out to you and your mum there's nothing I can say that hasn't already been said by others.
I'm one of the lucky ones that survived cancer and I work with 3 others that have survived, it's a ****ty disease and it still haunts me now over 8 years later, the slightest ache and you think its back. There's always hope as the survival rate is much higher, I hope for your sakes your mum can join the long list of survivors, try anything, natural stuff, hands on healers, whatever, never give up!!.
Good Luck
It was nice to read you had a fantastic Mothers day, I've been keeping tabs on this thread since day one and my heart goes out to you and your mum there's nothing I can say that hasn't already been said by others.
I'm one of the lucky ones that survived cancer and I work with 3 others that have survived, it's a ****ty disease and it still haunts me now over 8 years later, the slightest ache and you think its back. There's always hope as the survival rate is much higher, I hope for your sakes your mum can join the long list of survivors, try anything, natural stuff, hands on healers, whatever, never give up!!.
Good Luck
here is a pic of me and mum on mothers day
mum is so well now its hard to believe whats waiting round the corner...but this is the way i will remember her
27 March 2006, 07:55 PM
#102
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What a fantastic picture
You know, you people amaze me, all so very brave. Those of you who have beaten cancer and those of you fighting it, you have all my love and admiration. I truly hope you all get well, stay well and have a wonderful life. You all deserve it.
sara, big hugs to your lovely Mam xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
and the same to every one else xxxxxxxxxxxxxxxxxxxxx
You know, you people amaze me, all so very brave. Those of you who have beaten cancer and those of you fighting it, you have all my love and admiration. I truly hope you all get well, stay well and have a wonderful life. You all deserve it.
sara, big hugs to your lovely Mam xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
and the same to every one else xxxxxxxxxxxxxxxxxxxxx
27 March 2006, 08:00 PM
#103
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Its a leveller reading this thread.....
I thought my world had ended when I damaged my truck today, puts things into perspective.
I wish your Mum, you, and your family well.
I thought my world had ended when I damaged my truck today, puts things into perspective.
I wish your Mum, you, and your family well.
27 March 2006, 08:21 PM
#105
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http://www.truckweb.ca/images/PauleM...Oups_Crane.jpg
It should be OK, once I unhook my girlfriend from the jib...
I hope you dont mind my humour on your thread.
It should be OK, once I unhook my girlfriend from the jib...
I hope you dont mind my humour on your thread.
27 March 2006, 09:03 PM
#107
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Hey Squaresy...
I'm really sorry to hear your mums news... I haven't been on here much, but I have been thinking about you.
I can only imagine what you must all be feeling right now, and my heart goes out to you.
As you said, treasure every moment.Try not to dwell on what the future might bring - never give up hope.
Remember - love and laughter are wonderful things.
That photo is absolutely gorgeous. You can see the squaresy family resemblance
Loads of hugs to you both
xx
I'm really sorry to hear your mums news... I haven't been on here much, but I have been thinking about you.
I can only imagine what you must all be feeling right now, and my heart goes out to you.
As you said, treasure every moment.Try not to dwell on what the future might bring - never give up hope.
Remember - love and laughter are wonderful things.
That photo is absolutely gorgeous. You can see the squaresy family resemblance
Loads of hugs to you both
xx
28 March 2006, 06:10 AM
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All the best, stay brave, its difficult to add anything but I am thinking of you and your family.
Its about time they found a cure, but treatment has come a long way, I'm waiting to find out if my second bout is in remission its always difficult to come to terms with.
God be with you .........
STEVE..............
Its about time they found a cure, but treatment has come a long way, I'm waiting to find out if my second bout is in remission its always difficult to come to terms with.
God be with you .........
STEVE..............
28 March 2006, 07:12 AM
#111
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Really sorry to hear your news - have you got the MacMillan nurses yet? Just focus on each individual day - try not to think about whether she'll be here at Christmas - just enjoy every single moment. I know of people who've defied doctors and lived long beyond their predictions - but I also know that my dad was told his cancer was terminal and he had 3 - 6 months left and he died a week later (indirectly casued by the cancer).
That happened 20 years ago and I still really miss him - especially on Fathers Day (which is the day I was born and then, 18 years later, the day he died). The hardest part is realising that life will go on without them - and somehow it doesn't seem fair.
Try and get some professional help for yourself - you'll probably go through a whole range of emotions - including being angry at your mum for getting sick and then guilt for even thinking that - all of that is normal, but you need to be well supported yourself in order to support your mum.
Enjoy every single second you have with her.
That happened 20 years ago and I still really miss him - especially on Fathers Day (which is the day I was born and then, 18 years later, the day he died). The hardest part is realising that life will go on without them - and somehow it doesn't seem fair.
Try and get some professional help for yourself - you'll probably go through a whole range of emotions - including being angry at your mum for getting sick and then guilt for even thinking that - all of that is normal, but you need to be well supported yourself in order to support your mum.
Enjoy every single second you have with her.
28 March 2006, 11:39 AM
#112
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Desperately sorry to hear your news SS, I just hope for a miracle for you both.
That is an outstanding picture, bet you will treasure that one. I am glad you had such a good Mother's Sunday.
Yes that drug does cause bleeds in some people I was warned but not that often, I thibk there has to be a weakness somewhere for that to happen. I will ask about it for you tomorrow anyway. You are right, the drug is for advanced bowel cancer which has spread elsewhere, but the trial is to see whether is improves the figures for Chemo.
Keep happy, both of you,
Les
That is an outstanding picture, bet you will treasure that one. I am glad you had such a good Mother's Sunday.
Yes that drug does cause bleeds in some people I was warned but not that often, I thibk there has to be a weakness somewhere for that to happen. I will ask about it for you tomorrow anyway. You are right, the drug is for advanced bowel cancer which has spread elsewhere, but the trial is to see whether is improves the figures for Chemo.
Keep happy, both of you,
Les
28 March 2006, 12:03 PM
#113
the doc told us yesterday that the best results for that drug were on the ones that died. i think he meant that the drug worked well with the tumour but the other effects were not good. i hope you get some more info before you go into it as its brand new in this country and its still at the trial stage...and we all know what happened with that other drug
your in tomorrow arent you? we will all be thinking of you here...GOOD LUCK
make sure you keep us in the know and then we can make you laff when you need it
i hope there are a lot of people this thread has helped and i want anyone to feel free to post on here if they are going through similar stuff. it has been a great help to me so far and very upsetting at times but i am going to persevere till the end....where there's a will there's a way
your in tomorrow arent you? we will all be thinking of you here...GOOD LUCK
make sure you keep us in the know and then we can make you laff when you need it
i hope there are a lot of people this thread has helped and i want anyone to feel free to post on here if they are going through similar stuff. it has been a great help to me so far and very upsetting at times but i am going to persevere till the end....where there's a will there's a way
28 March 2006, 12:22 PM
#115
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I'm really sorry to hear your news. There's probably not much I can say that hasn't been said already.
My thoughts are with you both.
Best wishes to you & your mum
Lesley
My thoughts are with you both.
Best wishes to you & your mum
Lesley
28 March 2006, 12:29 PM
#116
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Great pic of you and you mum Sara
Sorry to hear your news, there isn't much more I can say that I haven't already said or others haven't said. This thread even helps me even though it's 3 years ago that I lost my Dad, I still find it really difficult to talk about, I went to the doctors yesterday and have to see a specialist (not cancer related), when the doctor started asking if any of my parents had had anything I had to say about what my Dad had, which was other numerous problems aswell, and I had to stop coz I couldn't carry on speaking, I could feel my throat and my eyes filling up, as it just was like going back in time and I could see it infront of me, I don't know sometimes if it's good or bad that I can't speak about it. I hope you and you Mum have a great holiday and great times to remember.
Sorry to hear your news, there isn't much more I can say that I haven't already said or others haven't said. This thread even helps me even though it's 3 years ago that I lost my Dad, I still find it really difficult to talk about, I went to the doctors yesterday and have to see a specialist (not cancer related), when the doctor started asking if any of my parents had had anything I had to say about what my Dad had, which was other numerous problems aswell, and I had to stop coz I couldn't carry on speaking, I could feel my throat and my eyes filling up, as it just was like going back in time and I could see it infront of me, I don't know sometimes if it's good or bad that I can't speak about it. I hope you and you Mum have a great holiday and great times to remember.
28 March 2006, 12:32 PM
#117
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Never give up Sara (sounds to me like there's no chance of that ) .
My Gran was given 6 months to live, 3 months before I was born. The doctor told her, "at least you'll be here to see your grandchild"
She died when I was 29.
Lovely pic by the way. My wife lost her Mum to a brain tumour when she was just 43, and has a picture of her and her Mum just like it.
Good luck to you all.
) . My Gran was given 6 months to live, 3 months before I was born. The doctor told her, "at least you'll be here to see your grandchild"
She died when I was 29.
Lovely pic by the way. My wife lost her Mum to a brain tumour when she was just 43, and has a picture of her and her Mum just like it.
Good luck to you all.
28 March 2006, 02:17 PM
#118
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Really sorry to hear what you and your family are going through Sara. As others I can relate to so much written on here.
3 1/2 years ago, my wife was diagnoised at the age of 28, whilst pregnant with our first child. To cut a long story short, she passed away 4 months after our daughter was delivered (3 months prematurely). My daughter (Natalie) spent 2 months in Intensive Care.
Anyway, the best I can do is to offer advice, with regards to what helped in our situation.
We immediately made contact with the local Hospice. They were just fantastic. Do not think that they will take over, and request that she stays now or anytime - indeed, my wife stayed at home. Get in contact now (GP will provide contact details), as they provide support for family etc. Best of all is the help with medication etc. They are there to support and help at this difficult time.
Be prepared for varying emotions, with both yourself, other family and your mother. It is all normal. Ensure that you Mum's wishes are fullfilled (as far as you can!!).
It is a very difficult time, but remember that you will have the strength to get through this, and try to lead on as normal as is possible. Stay strong, and be honest and open (which I am sure your relationship is anyway).
Remeber to ask for help, and to talk if you wish.
Wish I could help, and must say that everyone copes/deals with these situations differently, and although the above includes some of our experiences, these may not suit you.
Really like the photo, very natural, and most importantly not really posed for.
3 1/2 years ago, my wife was diagnoised at the age of 28, whilst pregnant with our first child. To cut a long story short, she passed away 4 months after our daughter was delivered (3 months prematurely). My daughter (Natalie) spent 2 months in Intensive Care.
Anyway, the best I can do is to offer advice, with regards to what helped in our situation.
We immediately made contact with the local Hospice. They were just fantastic. Do not think that they will take over, and request that she stays now or anytime - indeed, my wife stayed at home. Get in contact now (GP will provide contact details), as they provide support for family etc. Best of all is the help with medication etc. They are there to support and help at this difficult time.
Be prepared for varying emotions, with both yourself, other family and your mother. It is all normal. Ensure that you Mum's wishes are fullfilled (as far as you can!!).
It is a very difficult time, but remember that you will have the strength to get through this, and try to lead on as normal as is possible. Stay strong, and be honest and open (which I am sure your relationship is anyway).
Remeber to ask for help, and to talk if you wish.
Wish I could help, and must say that everyone copes/deals with these situations differently, and although the above includes some of our experiences, these may not suit you.
Really like the photo, very natural, and most importantly not really posed for.
28 March 2006, 04:18 PM
#119
Originally Posted by sarasquares
mum was so well and full of life we fooled ourselves into thinking she would be well enough for the treatment....
Really sorry to hear this. Please try and be strong, although that's a lot easier said than done, I'm afraid.
Saw a friend on Saturday who is also terminal. Really had to give myself a serious kicking to remind me that she will be dead very soon
. Like your Mum, she seemed so sprightly on the day you would never have known. Sad fact is we caught her on the best day she has had yet, in between chemo sessions. The radio sessions start soon.All I can say is enjoy every moment your Mum is with you. Thesea re such precious times.
Kind regards,
WB
29 March 2006, 07:05 AM
#120
thanks for all your support again everyone
mum is very down atm but thats understandable..she pinned all her hopes on Radical Radiotherapy which may have extended her life, as it is she can have the normal radiotherapy in a few weeks to inprove her quality of life
the doctor wouldnt give us an approximate time mum has left, he said we didnt need to worry ourselves about all that
when i asked if mum would be here after xmas he said no very quickly so we think it may be a lot less than we expect........no one will give us much of an idea even though we have asked. is this the same for everyone?
mum is very down atm but thats understandable..she pinned all her hopes on Radical Radiotherapy which may have extended her life, as it is she can have the normal radiotherapy in a few weeks to inprove her quality of life
the doctor wouldnt give us an approximate time mum has left, he said we didnt need to worry ourselves about all that
when i asked if mum would be here after xmas he said no very quickly so we think it may be a lot less than we expect........no one will give us much of an idea even though we have asked. is this the same for everyone?