Thanks Swati.

I would hope you could also be sorted, but it's difficult if people can't find an actual illness or cause, in the medical world.

Maybe you have been abducted

Seriously, my thougths are with you too, and hope you can get some answers. xx

 

Lisa, Just keep us informed.
Cheers
Colin

 

Quick update for those who followed my moaning.

From the tests so far and consultations, my neurologist believes I'm suffering from generalised tonic clonic seizures(some type of epilepsy). Helped further by some visual proof from the other half. It's sometimes difficult to explain what is happening, but apparently showing someone does help. Credit where credit is due, my neurologist has never fobbed me off so far and seems to care I get sorted. I doubt he'd give me the stuff I'm being prescribed if he didn't think I needed it.

The medication he has put me on will be for the long haul if it works, but still wants an EEG done (which should have been done by now even if it may well not show anything). Going next week for that.

Well, it could have been worse, but I'm a bit scared of going on the medication, but needs must.

Just thought I'd update, and thanks to all who have wished me well.

 

Be careful of the medication and monitor it for the first few weeks. My wife had some pretty heavy duty ones after being diagnosed with a form of epilepsy (falsely as it happens) and it made it difficult for her to drive occasionally.

Steve

 

Thankfully I don't drive, don't think I'd take the chance at the minute even if I could.

What turned out to be wrong with her?

 

What they mentioned medication wise?

Sodium Valporate, Carbamazepine, Phenytoin?

These tend to be the common one's in use if you want to research them

 

She had (well, has) a brain tumour (Acoustic Neuroma).

Steve

 

Lamotrigine.

Sounds like it used for a few things.

 

Sorry to hear that. Can it be treated?

 

Lamotrigine is a good drug, well tolerated and effective as first line monotherapy.

The MRI you've had is the routine check for an acoustic neuroma, so if it is normal for you Lisa, that is as much reassurance as it is feasible to give that there is no brain lesion.

 

And used a mood stabiliser, two birds with one stone eh

 

Was thinking the same myself.

 

I can't think of any more significant advice Lisa, but I hope that it does get fully sorted out soon and that you feel much better for it.

Les

 

Thank you. It has been treated with Gamma-Knife (targetted radiation) which has hopefully stopped it growing. Symptoms are still around occasionally: Dizziness, spliting headaches etc... and the only other treatment is to wait and monitor and hopefully it will not grow.

Steve

 

Well I can only hope the treatment at least keeps it at bay, you never know in time with advances more may be able to be done for her.

Send her my love.

 

Yes, the consultant said the MRI was clear. That was a relief.

 

Lisa, I've just seen this thread. Have they started you on 25mg a day to be increased fortnightly?

 

Holy **** ...... just read this thread and hope all goes well for you Lisawrx cos having read some of your posts recently ...... you're a good 'un.

All the best DS x

 

Yes, until I'm up to 75mg a day.

Aww thanks, that is a really nice thing to say.

 

That is still a low dose too but lets hope you are controlled at that.

 

Fingers crossed. Just hope it doesn't have too many side effects. If you worried about though, you'd never take anything I suppose. I do then have to go back for a review with the neurologist in 6 months time.

Thankfully I don't want kids or it would be a bit of a problem apparently.

 

Lamotrigine apparently is the better medication for women and is usually accompanied by folic acid tablets. Side affects will be tiredness at first.

 

Hope work will be understanding then.

Jeez I'm tired at the best of times.

Why do they accompany them with folic acid tablets?

Oh and thanks Spoon for your help.

 

Folic acid tablets are just to help should women want children. All women now are encouraged to take folic acid before getting pregnant anyway from what I read and hear.

Don't forget to get your free bus pass now too.

 

Shut up man, I don't get a free bus pass surely

I can apparently try for free prescriptions though.

 

Free prescriptions is a given, get that sorted ASAP. Free bus passes are the norm here too as many newly diagnosed epileptics have to hand in their driving licence. I doubt that it is any different where you live.

 

Will look into that. Thanks

Got the form for my prescription so will get that filled in and handed back.